Monday, July 30, 2012

Welcome

Well, here I am...a blogger!  ;-)  I'm so not sure what to blog, but if you know me, you know I'll think of something!  :-)  I've thought about this for a long time, just never really took the time to try to figure it out, so I hope you bear with me as I learn as I go. 

To bring those who may not know about my family, let me give you a brief (yeah right) rundown.  I'm a stay-at-home momma with two adorable children, 8 year old Rhen Scot and 5 year old Raina Skye.  I've been married for quite a few years to a pretty good sport (hey, he's put up with quite a lot and still keeps coming home everyday after work).

To attempt to be brief, back in 2009 I was diagnosed with breast cancer...a few days after having my first chemo treatment (after having a biopsy, and then opting for a mastectomy) our family found out that Rhen had a brain tumor.  It was located in such a place that if a biopsy would have been performed, we probably would have lost him.  (This so wasn't an option for us, hey, we tried 13 years to become parents!)  What are the odds, a mother and son both going through chemo at the same time?  I never have looked into that, but the odds seem slim to none to me. 

Anywho, we are fighters, in every sense of the word.  I just knew in my heart of hearts that the man upstairs didn't make me wait 13 years for nothing.  Rhen and I were going to be inspirations for each other!!  That is exactly what we were...picture this, sitting on the couch beside your 6 year old, having a conversation about whether or not you were going to continue with your chemo treatments or stop!!  Yep, we did that, I had a really bad episode during the second dose of my second drug and told myself that I was done!  Rhen brought me back to my senses (as soon as I said I was done, after he was questioning me about my track marks from all of the blown veins, I knew it hit him...I could see the wheels turning in his little head...I asked him what he thought I should do, and Bless that little man, he told me not to quit!) and I finished my 8 treatments without a second thought!!  We never let it get us down, you get up every morning, put a smile on your face and do what you have to do!!  That became our mantra!!  (Yes, there was times I broke down, who wouldn't, but I never let him or his sister see it!!)

So, here we sit at a crossroads again.  Rhen fractured his leg in May of this year, and as the swelling went down we noticed a knot that wasn't leaving on the inside of his little left leg.  (This leg has no muscle tone in the calf to begin with, and we've noticed that as he has grown, the leg was bowing more and more...blame that on the NF1, which I'll explain more about if any interest is shown.  *S*)  After two trips to Pittsburgh, I opted to find a doctor at WVU Children's (with the help of Dr. Paul, Rhen's oncologist).  Rhen had a biopsy done there the 24th of July...we are currently waiting on the results. 

I'm not a hateful person, but I can truely say that I HATE NF!!  So, with that being said, and me promising to be brief, if there is enough interest, I'll keep the blog going, not only as a momma's way to vent, but to keep everyone up to date on this wild, crazy and scary journey of ours. 

Follow the blog, share my blog...give me your thoughts about what I should blog about.  Basically, help me help you help me!!!  *L*  (Overlook my sense of humor at times, it can be out there in left field a ways.) 

Until next time...Peace <3 and ~HUGS~

5 comments:

  1. want more!!! kurt and i love you guys im def interested in reading more!!

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  2. *S* Thank you guys!! I'll work on another post later this afternoon! We LOVE you guys too!!! When you get down this way, please stop and see us, k??!!

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  3. On your dashboard, click on pages and put his in an "about me" tab...so new people can find it quickly. You have such an uplifting blog here, I'm sure people will want to follow!

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  4. Thank you Grit!!! I'll go do that now! *S*

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  5. Keep it going Tam! I love reading your blog, you do a wonderful job. I had no idea the trials Rhen has went through in his young life. If I can help, please let me know. :)

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