Tuesday, July 31, 2012

Waiting Game

So, gonna give a brief update on Mr. Rhenner's biopsy and then two little munchkins need baths before bed.  *S*

I have talked to Dr. Paul the last two nights, briefly.  As of right now we have no definite answers about anything, only that the results are leaning towards a very rare bone tumor.  Dr. Paul, Dr. Lindsay and the pathologist have all put their heads together and decided to send a sample off to John Hopkins.  We will hopefully know something sometime Monday, August 6th...Dr. Paul said if I had not heard from him before Monday afternoon, to give him a call!  (Have I mentioned how much we LOVE Dr. Paul???  He's absolutely awesome!!)

So, this waiting game that has haunted me most of the summer continues...until then, I will let my boy be just that, a boy (for the most part, his little leg makes me put the whammies on certain things, but he totally understands).  I stress and worry when the kids are asleep, for that hour or so before I make myself go to bed...while they are awake, I'll enjoy being distracted by their little fights and fits of giggles...we will dance and sing like no one is watching...that's just how we roll!  *S*

So, until the next post...Peace, <3 and ~HUGS~

Monday, July 30, 2012


Well, here I am...a blogger!  ;-)  I'm so not sure what to blog, but if you know me, you know I'll think of something!  :-)  I've thought about this for a long time, just never really took the time to try to figure it out, so I hope you bear with me as I learn as I go. 

To bring those who may not know about my family, let me give you a brief (yeah right) rundown.  I'm a stay-at-home momma with two adorable children, 8 year old Rhen Scot and 5 year old Raina Skye.  I've been married for quite a few years to a pretty good sport (hey, he's put up with quite a lot and still keeps coming home everyday after work).

To attempt to be brief, back in 2009 I was diagnosed with breast cancer...a few days after having my first chemo treatment (after having a biopsy, and then opting for a mastectomy) our family found out that Rhen had a brain tumor.  It was located in such a place that if a biopsy would have been performed, we probably would have lost him.  (This so wasn't an option for us, hey, we tried 13 years to become parents!)  What are the odds, a mother and son both going through chemo at the same time?  I never have looked into that, but the odds seem slim to none to me. 

Anywho, we are fighters, in every sense of the word.  I just knew in my heart of hearts that the man upstairs didn't make me wait 13 years for nothing.  Rhen and I were going to be inspirations for each other!!  That is exactly what we were...picture this, sitting on the couch beside your 6 year old, having a conversation about whether or not you were going to continue with your chemo treatments or stop!!  Yep, we did that, I had a really bad episode during the second dose of my second drug and told myself that I was done!  Rhen brought me back to my senses (as soon as I said I was done, after he was questioning me about my track marks from all of the blown veins, I knew it hit him...I could see the wheels turning in his little head...I asked him what he thought I should do, and Bless that little man, he told me not to quit!) and I finished my 8 treatments without a second thought!!  We never let it get us down, you get up every morning, put a smile on your face and do what you have to do!!  That became our mantra!!  (Yes, there was times I broke down, who wouldn't, but I never let him or his sister see it!!)

So, here we sit at a crossroads again.  Rhen fractured his leg in May of this year, and as the swelling went down we noticed a knot that wasn't leaving on the inside of his little left leg.  (This leg has no muscle tone in the calf to begin with, and we've noticed that as he has grown, the leg was bowing more and more...blame that on the NF1, which I'll explain more about if any interest is shown.  *S*)  After two trips to Pittsburgh, I opted to find a doctor at WVU Children's (with the help of Dr. Paul, Rhen's oncologist).  Rhen had a biopsy done there the 24th of July...we are currently waiting on the results. 

I'm not a hateful person, but I can truely say that I HATE NF!!  So, with that being said, and me promising to be brief, if there is enough interest, I'll keep the blog going, not only as a momma's way to vent, but to keep everyone up to date on this wild, crazy and scary journey of ours. 

Follow the blog, share my blog...give me your thoughts about what I should blog about.  Basically, help me help you help me!!!  *L*  (Overlook my sense of humor at times, it can be out there in left field a ways.) 

Until next time...Peace <3 and ~HUGS~